Sonya Joseph, UK
Sonya Joseph, mother to Mareyah first child in the UK with Trisomy 18 to receive a tracheostomy. The reason we are all here – Mareyah Louise Hope, what brought about this conference and the need to share
Mareyah’s story. Sonya has 6 children and Mareyah is the youngest at nearly 21 months. Dominic 16, Kion 13, Braydon 12, Lucus 10 and Tayah Mai 4. When Sonya received the news at her 20 week scan that there was something wrong with her baby she was in shock, what could possibly be wrong, the words Edwards syndrome were mentioned and an amniocentesis was arranged to confirm the suspected diagnosis.
The results confirmed that her little girl had Trisomy 18 or Edwards Syndrome, “I am sorry to say that babies with this condition are not compatible to life and the pregnancy would almost certainly end miscarriage or baby would be stillborn, we would advise you to consider a termination. The baby has severe heart defects, horseshoe kidneys, cleft lip and palate and has some deformities of the limbs”. After much deliberation and souls searching Sonya decided that she would continue with the pregnancy and give her little girl a chance. The following few weeks were difficult to say the least, full of negativity and very little professional support.
This is when Sonya decided that she wanted to help other parents that received the devastating news that their baby had a life limiting condition. Listen to her journey through pregnancy birth and now.
The diagnosis; Fear, Faith and Hope;