The development of prenatal diagnosis technology has opened new experiences for families and their healthcare providers. While new technologies within medicine are always to be encouraged, they bring about new challenges and concerns as well as hopes and optimism.
Expectant parents now receive more information about their unborn child than in past years. When that news includes congenital anomalies, complex cardiac defects or chromosomal anomalies that will shorten the babies life, the journey to parenthood can take an unexpected turn.
How clinicians and other healthcare providers tell a family that their baby has a life limiting condition which means it may not live for very long can have a lasting impact. Parents in this situation can be extremely distressed, worried and vulnerable and have needs that will be different to those expecting a healthy baby.
This can also be a difficult time for hospital staff who may not have encountered such a situation before, and may feel ill equipped to provide optimal care to the woman and her family. While staff will always try and do their best for parents in these circumstances, every patient deserves to have their care on par with best international standards.
Women who receive a life-limiting prognosis for their baby deserve to have the best care possible for them and their baby during and after pregnancy. The Conference on Perinatal and Hospice care will discuss some of the issues surrounding this unique and delicate clinical presentation.
Presentations on revolutionary treatments that could potentially influence the way we manage such life threatening conditions, such as Tracheomalacia, and advances on the management and treatment of complex airways, New data and research on Trisomy18/13 usually described as not compatible with life or a lethal condition and how with some medical intervention these babies can and do survive will be sure to expand your knowledge on caring for babies born with such conditions.
Anyone who is involved in the care and treatment of pregnant women, or the newborn child, would benefit from attending this conference. In particular, those clinicians and support staff who care for families faced with the devastating diagnosis of a life limiting condition for their baby will be hugely rewarded. Healthcare providers who work in such specialised areas as palliative care, fetal cardiology or high risk obstetrics will also gain invaluable insights into these ever expanding fields of medicine.